23 November 2013

Some Final Thoughts (for now)

I said I would talk more about my last appointment and now (that I'm procrastinating from writing my thesis) is the time.  I met with the doctor who did my last retrieval about 2 weeks afterwards.  I was still disappointed, but recovering very well (the fewer eggs, the easier the recovery I think).  I had questions.  I also think I felt a bit lost.  This has been a very emotional process.  Not difficult necessarily, but certainly emotional.  I put a lot of effort in the past year and a half to thinking about children and my future, I do all of this and then.... it all gets put on hold.  Although I continued to date this past year and a half, I didn't meet anyone special.  I'm finishing up a PhD which means my job status is uncertain for at least 6 months.  I've been finding it just as hard to 'let go' of all the thoughts this brought up as it was to have them in the first place.

So, the first question, would going back on birth control damage my fertility, and if not, how soon could I go back on it?  I had my post-retrieval period and the doctor suggested it would be no problem at all to go back on birth control on the next natural period after.  So in a couple weeks, I'm back on the pill.  There shouldn't be any negative side effect to my fertility for being on the pill, so that's fine.

In the future, if I want to get pregnant, the doctor suggested I still try naturally or 'less invasive' methods before using my frozen eggs, particularly if I want to try within the next three years.  My fertility wasn't that bad, and it could be I still could get pregnant naturally, so she said I should try that first.  Depending on my fertility numbers at the time, she also suggested I might want to try fresh IVF in the future and reserve the frozen eggs as the last resort.  She stressed that as a woman who doesn't know if she has fertility problems, I shouldn't compare myself to those who seek IVF because they already know.  She said I should try less invasive options first because I may not have fertility issues.  Of course, I'm conscious that my age works against me in this, but I understand what she's saying.  In fact two very good friends of mine who are my age now (39) both are pregnant naturally.  These things do happen.  I think being immersed in the infertility world can skew your perspective.

The clinic I used to freeze my eggs can help with sperm donation or with a future partner, or a known donor.  If I want to go down the sperm donor or known donor path in the future there are tests and counseling and paperwork to take care of and the clinic can help with all of that.

To be honest, that was pretty much it.  While she agreed that no frozen eggs was any sort of guarantee, she stressed to me that I don't know the quality of my frozen eggs.  That all it takes is the one.

And that was pretty much it with the doctor.

I then had a counseling appointment with the counselor I saw previously.  We talked about how I felt regarding 'putting everything to sleep' for now.  I talked about how I felt a sort of loss- like, you do all of this thinking about becoming a mother, and then there is no motherhood or even attempts at motherhood immediately following this process.  We talked about how that's hard.  About how when you start to open yourself, honesty and truly, to the idea of becoming a mother, and you decide that it's something you want, that it changes you.  That not becoming a mother, either just for now, or forever, is a sort of loss.  I talked about how I have thought about becoming a 'single mother by choice' and that I'm not convinced that I'll meet anyone with which to start a family in the next year or two (that I want to start a family with).  I talked about how I feel old, that many of my friends have children or are pregnant and that I feel somehow 'behind'.  She pointed out to me that you shouldn't have a child just because everyone else is doing it.  Which wasn't what I meant, but I think is important to reiterate.  It's more the frustration of seeing other people have what you want.  And when I feel 'behind' I guess what I'm really saying is that I feel deficient.

But anyway, that's more of a personal issue to address, and it's not solely related to motherhood, but I would suggest relationships in general.  The counselor did challenge me to consider why I was putting a 2-year framework in place.  That if I want to become a mother, why should I wait that long?  She had a point.  My main issue is that I want to be in a financially secure place, and mostly that I want a job where I will get good maternity coverage.  This means finishing the PhD and getting a permanent position.  If I stay in academia, a lot of jobs are contract and not permanent and this is a problem.  Not impossible, just something I feel I want to have sorted before undertaking what I imagine will be single parenthood.  But, if I get that job next year, then I suppose it's true- why should I wait?  I guess part of it is also an imagined time limit window on how long I'm willing to keep looking for 'the guy'.  That by deciding to just move forward, it's like saying I'm giving up on that.  I think this is something I need to continue to think about.  If I get the job, then maybe I should just move forward.  Watch this space.

And yes, speaking of which, so what does this mean for the blog now that I'm done for the time being?  Right now there are a lot of women considering, and undertaking, egg freezing.  But what about the future?  I imagine this blog is going to go to sleep for a while, but I will use it to post anything I come across that I think is relevant, add to the links on the right hand side, and I am happy to answer questions if anyone has them.  But I think when the time comes for me to use the eggs, I will come back here and update.  That may mean linking to a new blog, but I hope to eventually be able to post about how this story continues.

Otherwise... if you've come here to find information on egg freezing, I hope you find this blog helpful.  I encourage you to talk to other people, make use of the resources that are available to you.  I wish you the best in what can be a difficult and emotional process.  I think a lot of women come to this position, because they feel alone.  I suppose in one way, we are, but then, we aren't at all.  Good luck on your path.

12 November 2013

Final Costs

I went to the clinic today for my last follow up appointment.  I have more to say about that, but I thought I'd separate the posts.  This one is going to be about costs.

If you want to see all my posts documenting cost along the way, you can either click on the word cloud "cost" over to the right hand side, or, you can click here.

So here's the final breakdown:

Previous total cost for 2 cycles£10,481
Follow up Appointment£120
Drugs from Healthcare at Home £729
Egg Freezing Cycle£2800
Final Total £14,130

The doctor I saw today did not charge me for the follow up appointment.  I feel confident that if I'd seen either of the other two, they would have.  I'm not complaining.

With 13 eggs in the freezer, that's around £1,100 per frozen egg.  That's expensive.  I mean, that's really expensive, when you consider that one or two may not defrost, and I may not even get a baby from them.  Heck, I may not ever USE these eggs.

It's important to note that I have paid up front for 10 years storage.  If I don't use all 10 years, I should be refunded some amount for the years I don't use (maybe £800 back let's say?).  I also paid for blood tests and things that I might have been able to get done for free or for cheaper through my GP and not through the clinic (£250 or so?).  There was also the added expense of not knowing about Healthcare at Home for my first cycle, and the cost difference for that is explicitly documented in my post about Reducing Drug Costs (£1000 approximately).  

But here's the thing.  If the time comes in the future that I did want to have the option to use frozen eggs, would I regret this if I had NOT frozen my eggs.  100% absolutely.  

In the end it's only money.  Regrets are far more expensive.

29 October 2013

Cycle 3: Day 16

So my collection was this morning and I got 3 mature eggs that were able to be frozen.

This is not the ending that I was hoping for, for this particular journey or this final cycle.  That brings the grand total of three rounds of egg freezing to 13 frozen eggs.  Which is what many women (with two ovaries) get from their first and sometimes only cycle.

I hasten to add that I don't in any way regret that I've done this.  Just that I am a bit sad about the results.  As I think I mentioned in my last post, the odds of a live baby from 13 eggs seems maybe not so great.  Of course there is no way to know that until I actually go to use the eggs.  And even if I had 20 eggs there might not be a baby at the end of it. 

It is what it is.  I'm 39.  It's little bit late.  It would have made no sense to wait longer, although I do wish I had known about this, or done it sooner, these are things you can't change.  So I worked with what I had, and so far this is what I've got.  Which may actually be plenty or it may not at all.

I suppose I just don't have as much confidence as I would like.  But as I say, that's a false hope anyway.

Everything towards the end of the cycle went easily and well.  No problems with any of the injections.  All was easy and simple at the clinic this morning.  I don't have any pain or discomfort at the moment, though I might have a bit of cramping when everything wears off.

I have a counseling appointment in 2 weeks time and I think I'll schedule a follow up to talk through things like, when can I go back on birth control, and talk a bit about future pregnancy and timelines and things like that.  The counseling appointment will probably be a good thing.  The follow up appointment is a necessary thing, and I'll be annoyed, as usual, that I'll have to pay for it.  But it's definitely weird to me to just leave things like this now.  Especially when I have a number of questions.

When that's complete I'll also do a final cost tally.

And I'll probably prepare some final (or final for now) thoughts on this process overall.  I think doing it right now however, probably isn't the best idea.

24 October 2013

Cycle 3: Day 11

Had my last scan of this cycle this morning.  Retrieval is scheduled for Tuesday.  This means I'll be taking my trigger shot Sunday night which will be day 14.  This is identical to my last cycle, and one day ahead of my first cycle.

This morning I woke up with a horrible lower back pain on the side of my ovary.  I'm sure the enlarged ovary isn't helping any because I also feel pretty bloated in the stomach now, but the truth is, I get my fair share of lower back pain so I wasn't overly alarmed.  I was annoyed though because what I usually do when I have this pain is some yoga stretching which is mostly spinal twisting.  Given that twisting is a big no-no with an enlarged ovary, I've been suffering back pain all day now.  It's not very nice.  And of course I can't take any pain killers either.  Ugh.

Saw the director of the clinic again this time as my normal doctor was fully booked.  I've seen him once already this cycle so I didn't mind too much, although I would probably prefer to see the same doctor throughout.  He had a good look and measure of the follicles and the ovary (I think because I also mentioned the back pain).  Apparently everything is growing at pretty much an identical pace to the previous cycles so I suppose it's good that I'm reasonably reliable.

He counted six good sized follicles with a couple more behind, so that was good.  I was watching the scan as he looked and it was difficult to tell sometimes where one started and another stopped.  When they are side by side it's easy, but when they're on top of each other it's not as clear.  At any rate, it looks like I have a bit more follicles than last cycle, although obviously they may not all contain eggs.  I also have three more days of stimulating.  So hopefully it will all go as previous and I get a reasonable number of eggs.

So having the retrieval day, my next order of business was to find someone to collect me from the clinic.  I still think this is one of the more demoralizing aspects to egg freezing.  My collection is on a Tuesday morning.  So I have to ask someone to take off work to meet me.  I don't have a partner where it would sort of be their obligation.  It's not always easy.  I've was pretty lucky the first two cycles but this one wasn't so easy.  I had to call and email a few people before I finally found someone who could do it.  I had talked to the receptionist about if I really couldn't find anyone and I did have a back-up plan to take a taxi home.  It would have worked out either way, but I guess what I'm saying is, it's not nice to feel alone in the midst of this.  It's just one more thing you don't really need.

Anyway, it's sorted.

And I'm probably particularly feeling grumpy because of the hormones.  I can tell that I'm definitely grumpy!

I have enough drugs to see me through so that was all good.  I'll end up with one 225 dose of Gonal-F left in the pen but that means I completely saved money by buying the drugs externally.  The only thing I had to get from the clinic was the Voltarol suppository, but they give me that for free, so not a problem.  Only four more days of injections left!  I'm actually pretty excited that this is almost over!

In other news mulling over in my head, over on the eggsurance forum there has been a woman posting about how she tried to use her frozen eggs.  I'm not sure of all the details, but it seems like she had 9 frozen eggs in total, it resulted in two embryos, both of which she implanted, but both of which were miscarried recently.  That was a bit depressing to hear.  I know there are a lot of factors that go into all of this and you can't really compare yourself to one person on a forum, but I'm just conscious that I'm not going to end up with that much many more eggs than she had.  I guess it's important to remember that none of this is any sort of guarantee.

It's not worth thinking about it too much.  I feel bad for the woman.  There are other options, and I hope she feels satisfied that she did what she could, but it's definitely a blow.

Anyway.

Unless something remarkable happens between now and retrieval, I'll next write to say how it all went.  I have an acupuncture appointment on Saturday which I'm oddly looking forward to.  You'd think I'd be fed up with needles by now!!

21 October 2013

Cycle 3: Day 8

Had my scan this morning.  Nothing eventful to report as it all seems to be very routine now.  The doctor measured 5 follicles which are 'growing' and 3 that are 'just behind'.  I've also now dropped from 300 Gonal-F to 225 and will stay on the lower dose.

I'll be honest.  The numbers are slightly disappointing at this stage.  As I got 6 eggs from my first cycle and 4 from my second, even though I've been on a higher dose of drugs, this cycle seems to be smack in the middle so far, and that's assuming I get an egg out of every follicle.  I was definitely hoping for more.  But we're still only about halfway.

That's the other thing- the doctor had said that due to the higher drug dose, the cycle might be shorter.  But at the moment it looks like it's going to be just about the same amount of days.  So I have another seven days to go give or take.

It is times like this where I do get a bit frustrated that I am not convinced that the UK clinics are using the best drugs or the best protocols or doing everything they can.  On the eggsurance forum, most of the women are from the States and it's like we're doing completely different things.  Part of me wonders if I wouldn't be getting more eggs on a different regime.  But as per usual, this sort of thinking is vaguely pointless.  I have to remember that my clinic has some of the highest pregnancy and live birth results in the UK and not because they're selective and turn anyone away.  Newer stuff and more tests isn't necessarily better.  But I am used to a system of having more information and more discussion.  That doesn't mean it's actually more useful, it might just mean I feel differently about everything.

But I go back to this all being a stressful process (and 7 days of hormone injections later, it's not entirely surprising I'm starting to feel a bit anxious).  There are so many unknowns about what I'm doing that it makes me desperate for some small inkling of certainty.  And I'm just not going to get it.  Who knows if these eggs will fertilize?  Who knows if I will ever be in a position to fertilize them?!  There's just a lot of questions that I can't answer at this stage.

Oh, and I should also say that since I have a dermoid cyst on my ovary, it's probably not at top form either.  Every time I see the cyst on the scan it just annoys me.  Who knows how it affects that side of my ovary on which it lives parasitically?  So really, I'm not complaining.  Or, I am complaining, but I'm more complaining about the unfairness of life, the fact that I find myself in this position at all, and that life hasn't turned out the way I thought it would.

As far as the cycle goes, really, everything is fine so far.

17 October 2013

Cycle 3: Day 4

Had my scan this morning.  There was a fuck up at the clinic- as my appointment was just not on the system.  I showed up, but they didn't have me down and of course the doctors were fully booked.  I had scheduled a counseling appointment for after my scan, so I had that and then the clinic director (not my normal doctor) saw me.  So it was okay in the end, although I would have preferred to see my regular doctor, there are only 3 doctors and I always see a doctor so it's not that big a deal.  I suppose it's just good luck though that I'm a full time student and could waste my entire morning instead of being done by 10:30 like I'd planned.

So scan reporting first.  The doctor saw 7-8 follicles, they're all still small, only about 6.5mm.  He's keeping me on the 300 Gonal-F for three more days and then I drop down to 225.  My next scan is on Monday.  I also start adding the Cetrotide tonight.  Got to keep hold those little growing eggs!  So really nothing else to discuss about the scan.  All is regular.  Continue on course.

The counseling session was interesting.  I really think it's something I should have done during my first cycle.  I did a lot of thinking and working through stuff on my own (some of it's on here).  So this was a bit more like me reporting to someone else about the process I feel I've gone through.  You know- first having to face up to the whole children issue when I always thought it would vaguely 'happen some day' and suddenly realizing that 'some day' was really on a very limited time scale.  Then having to process what it might mean if I don't find a partner in the next couple of years and whether or not I'd be willing to have a child on my own (I would).  Of course that comes with no small amount of sadness and guilt and stress.  I also talked about how coming to these decisions has changed my view of the future about things like what job I want to take after I finish the PhD as I am thinking about things like maternity cover.

I've made another appointment to see her after this cycle finishes and when I put this egg freezing chapter of my life to bed for now.  So I will report back on how that goes.  Overall though, I thought it was really good to talk to someone, I just feel a bit dense for not doing it sooner.

15 October 2013

Cycle 3: Day 2

So I did my first injection last night and it was sort of surreal.  In many ways I feel very unprepared for this cycle, although I'm not really.  I'm just so incredibly stressed right now and I seem to have so many things going on.  Then I'm adding the egg freezing on top of everything else.  The injection was fine though, no problem.  I did read through the little instruction book though just to make sure I remembered everything I'm supposed to do!  Although how hard is it to wipe with sterile pad, screw on needle, turn dial to 300, pinch, inject, hold for 10 seconds, release! 

My next scan is on Thursday to see how they are growing.  I have also arranged a counseling appointment for Thursday.  I should have done this sooner but due to the above mentioned stress, it's just been one more thing on my to do list that slipped.  Never mind.  I've managed to arrange it now for just after my scan so we'll see how that goes.

Part of me wonders if my current stress levels haven't been exacerbated by my hormone injection last night.  Although honestly, I'm sure this is not the case and I'm actually just stressed but I feel particularly 'not with it' today.  Who knows.  It doesn't really matter!  It's all systems go now.  I hope we see a good number of follicles on Thursday...